Friday, March 13, 2015

The Emotional Toll of Epilepsy


It’s 8:15 on a Friday night, and we’re sitting in the Emergency Room of our local hospital. This isn’t our first Emergency Room visit, and it won’t be our last. I guarantee it. And it’s not that I mind being here with my sweet husband on this night, it’s that my heart breaks for him and what he’s gone through to put him here.

Adam has epilepsy, which developed after a tragic car accident when he was eleven years old. The words- which I have repeated to doctors, nurses, friends and family over the last six years- are easy to say. Traumatic Brain Injury. Seizures. Treated with medication. Triggers. They’re easy to say, but what’s not easy to convey is the all-encompassing, overwhelming existence that is life with epilepsy. There’s no way that anyone can fully understand or sympathize with the pain that my husband feels.

But we’ll get to that.

The reason we’re sitting in this Emergency Room is that my husband had a mini seizure- a “twitch” is what we have termed small spasms that drop him to his knees. This has happened before- but this time, when his legs turned to jelly, we were walking the dogs. I saw it happen- in slow motion, maybe- he looked twice and started to cross the street, and his legs were gone from beneath him. The leash clanked to the ground and the dog was startled. My husband fell hard onto the asphalt, and his head crashed against the street.

I rushed to help him up as a neighbor looked on from his driveway. The tears started flowing immediately, both of us. He limped home and as he was washing his face, he looked at me and said, “Some days, I just feel like giving up. I’ll never be able to do all the things I want to do. “  I didn’t want to upset him further, but this was the first time he articulated what he was feeling about his seizures- and I admit that I have felt it some days, too: Sometimes, the pain and reality of this horrible condition seems to be too much… insurmountable.

If I have learned anything from my husband, it’s to get up and keep going- every day. Adam always has a smile on his face, and it’s only in these rare moments that I see how much living with epilepsy affects him emotionally.

Adam is the strongest & sweetest person I know. Strongest because he continues to live his life without becoming jaded or sad about his circumstances or the situations he’s been through. Sweetest- because he wakes up every day with a smile on his face, and something tells me that no matter what happens- he always will.

Sunday, January 25, 2015

Graduation Update!

Happy 2015! Every time I promise to update more, life gets in the way! However, I have great news to report going into 2015.

Adam graduated with honors on 12-13-14 with his Bachelor's in Sociology! I can't explain how very proud I am of Adam for his amazing accomplishment. When he enrolled in school 4 years ago, we had so many obstacles to overcome, and questions to answer. How would he get to school every day? How would he handle the course load? How would he take notes? What happened if he had a seizure on campus? Throughout his four years, we revisited those topics more than once-and persevered through everything that came our way.

Adam and I on Graduation Day!
Now that Adam  has graduated, he is actively job-searching for a position in social services and/or nonprofits. He has a passion for helping people, sharing his story and aiding his community. He has filled his days with volunteerism with the United Way and The Senior Center, and this Christmas he worked with The Angel Tree program. Adam feels that giving back to his community is a great way to share his talents, and I agree! He's definitely keeping busy!

One more big announcement: Adam is going into 2015 SEIZURE-FREE! He hasn't experienced a seizure since sometime in December (with all of the excitement of graduation, we haven't kept track!) We credit this drop in seizure activity to less stress since school is over, more sleep, less carbs (we have been cutting sugar & the majority of carbohydrates from our diets), and finally getting his medication dosages right.

2015 is going to be a big year for us, but especially Adam! We look forward to all of the opportunities that are coming his way. It's hard to believe that we have been together nearly six years and married for 18 months!

Adam is a prime example of the amazing things you can do when you push yourself to follow your dreams and live your life, regardless of disability or the obstacles that crowd your way. Stay tuned...it's going to be a fun year!

Laylan & Adam